The 12th International Meeting for Neuroacanthocytosis Syndromes, Cohen Syndrome and VPS13-related disorders will take place in Lausanne, Switzerland between Friday, 12 September and Sunday, 14 September.
Explore the practical information and the sessions dedicated to patients, their families and carers affected by VPS13A disease or XK disease.
Check the NA Patient-oriented programme in your language:
English version | Version française | Versão em português
Deutsche Version | Versión en español
Also check the full scientific programme for a breadth of presentations on research progress updates and latest findings about VPS13A disease and XK disease, as well as all the other VPS13-related disorders.
The 11th International Symposium took place in Homburg (Saar), Germany between 15 and 17 September 2023. Read the detailed report of what went on and you can also download a pdf copy of it.
Previously, we have held ten symposia around the world with researchers and clinicians attending, speaking and forming alliances. Symposia have been held in Barcelona, Dresden, Ann Arbor, Stresa, Ede, Bethesda, London/Oxford, Kyoto, Montreal and Seeon and have formed the foundation of ongoing projects as well as opened doors to other work in the study of diseases of the basal ganglia.
Since 2016, our symposia have included a programme for patients, family members and carers.
You can read a summary of the 2021 Barcelona Online Symposium here.
The Advocacy supports not only the running of the symposia but also the publication of scholarly articles and textbooks arising from the meetings.
Sponsors of these symposia have been Carl H. and Elizabeth S. Pforzheimer III, Fritz Thyssen, Stiftung, High Q Foundation, Margaret Kinross Foundation, Montreal Neurological Institute and Hospital, Movement Disorder Society, Nippon Boehringer Ingelheim Limited, Novartis AG, Sanofi-Synthlabo GmbH, Pfizer AG, Imperial College Genetics Therapies Centre, agencies of the US National Institutes of Health, Glaxo Smith Kline, Neurocrine Biosciences and The Allergan Foundation.
The symposia have all been endorsed by the Movement Disorder Society.