The Advocacy is grateful to the scientists whose input has been invaluable in the creation of this website, particularly Professor Adrian Danek and Dr Ruth Walker. We also thank Alex Irvine and Martin Ireland for contributing their artwork.

Furthermore, we extend our thanks to the researchers, patients and family members who appear in the images used on this website.

The majority of the images we use belong to the Advocacy for Neuroacanthocytosis Patients. However, we occasionally use stock photos generously made available by artists and photographers via websites such as We are grateful to these artists for sharing their work in this fashion.