Patients

The Advocacy supports patients, their families and caregivers. Given the rarity of the NA diseases and the small number of patients, support tends to be of a personal nature and is primarily given in the form of private messaging, telephone calls and email correspondence.

In addition to offering personal support, we aim to provide up-to-date information which is made available on this website, in our newsletter, NA News, and through our social media channels.

Invitations to research forums and symposia are issued via email and through notifications on Facebook and Instagram.