Patient Support

We are committed to supporting patients, their families and caregivers. Given the small number of patients affected by NA diseases, support tends to be of a personal nature and is primarily offered in the form of private messaging, telephone calls and email correspondence.

Other initiatives include the translations of the Advocacy’s online newsletter into multiple languages, to reach as many patients as possible and the encouraging of individual physicians to register the patient’s case. We provide moral support through positive reports in the NA newsletter where patients share events they have organised, trips they have undertaken or other achievements. We also issue medical alert cards to patients and carers in case of emergencies to alert health professionals to their specific circumstances and requirements. If you would like to request a medical alert card please contact