In order to facilitate continued conversation, the Advocacy has initiated a virtual VPS13 forum for the international community of clinicians, scientists and families dealing with chorea-acanthocytosis (now more commonly referred to as VPS13A disease) or McLeod syndrome (also known as XK disease), respectively. The forum meets every two months on Monday and the live sessions are open to all. The next session dates will be March 27, May 29 and July 31.
You can read reports from previous zoom meetings in our newsletter. See issue 40, issue 39, and issue 38.
A link to upcoming meetings can be requested from kevin.peikert@med.uni-rostock.de.