Research Forum

In order to facilitate continued conversation, the Advocacy has initiated a virtual VPS13 Forum for the international community of clinicians, scientists and families dealing with chorea-acanthocytosis (now more commonly referred to as VPS13A disease) or McLeod syndrome (also known as XK disease), respectively. The forum meets every two months on Monday and the live sessions are open to all.


You can read previous reports from older virtual meetings in our newsletter. See issue 40, issue 39, and issue 38.

A link to upcoming meetings can be requested from