NA is so rare that pharmaceutical companies see little potential commercial value in supporting basic research into the conditions. An important part of our campaign is to encourage academic inquiry into the unique clues that NA offers in the search for the causes of neurodegeneration. This may lead to discoveries important for progress with treatments for Parkinson’s and Huntington’s diseases as well as NA.
One of the ways in which we facilitate this is by bringing together neurologists and researchers from across the globe through our international symposia and online research forums. The research forums are open to patients and families and regularly include Q and A sessions, offering participants the opportunity to engage directly with the leading scholars in the field and inquire about research progress.
The symposia include sessions targeted at patients and their caregivers such as speech therapy and music lessons.