The Advocacy for Neuroacanthocytosis Patients is a charity registered with the Charity Commission of England and Wales under the number 1133182. We have little administrative expense thanks to our dedicated volunteers. Our annual report gives the full story of last year’s progress.
NA is so rare that pharmaceutical companies see little potential commercial value in supporting basic research. An important part of our campaign is to encourage academic research into the unique clues that NA offers in the search for the causes of neurodegeneration. This may lead to discoveries important for progress with treatments for Parkinson’s and Huntington’s diseases as well as NA. Families and friends of NA patients, together with friendly foundations and companies have financed research projects leading in this direction.
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