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Neuroacanthocytosis Advocacy USA, Inc.

English

Welcome to the online presence of the newly formed US-based nonprofit – Neuroacanthocytosis Advocacy USA, Inc. (NA-USA). We are a sister organization to the international NA Advocacy organization based in London, but our purpose is the same – to raise awareness of diseases in the neuroacanthocytosis (NA) family, to support patients and caregivers, and to foster research into the causes and treatment of the NA family of diseases. You will see the two organizations pool resources, ideas, and in general, work cooperatively with one another. For example, NA Advocacy is graciously allowing NA-USA to share its website by creating this tab.

NA-USA is a 501(c)(3) tax exempt organization, incorporated in the State of Florida, which means that US donations to our organization are exempt from US federal taxes. 

To make a donation, please mail your gift to Neuroacanthocytosis Advocacy USA, Inc. at 2285 Harlock Road, Melbourne, FL 32934. 

Our founding board members are as follows:

  • Susan Wagner of Greenville, South Carolina: President
  • Joy Willard-Williford of Melbourne, Florida: VP, Secretary, Treasurer
  • Bob Metzger of Minneapolis, Minnesota
  • Ruth Walker of New York City/Fishkill, New York
  • Ginger Irvine of London, England 

Questions about the organization may be sent to Susan at susan@naadvoacyusa.org or to Joy at joy@naadvocacyusa.org.

We are also on Facebook at: https://www.facebook.com/Neuroacanthocytosis-Advocacy-USA-Inc--103162274794616

 

A COPY OF THE OFFICIALLY REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM FLORIDA’S DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE 1-800-435-7352 WITHIN THE STATE. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL OR RECOMMENDATION BY THE STATE. REGISTRATION #CH62785. 100% OF THE PROCEEDS BENEFIT THE MISSION OF NEUROACANTHOCYTOSIS ADVOCACY USA, INC.